Health & Wellness Resources
According to Got Transition, “Health care transition, or HCT, is the process of moving from a child/family-centered model of health care to an adult/patient-centered model of health care, with or without transferring to a new clinician. It involves planning, transfer, and integration into adult-centered health care. The goals of health care transition are:
- To improve the ability of youth and young adults with and without special health care needs to manage their own health care and effectively use health services, and;
- To ensure an organized process in pediatric and adult health care practices to facilitate transition preparation, transfer of care, and integration into adult-centered health care.”
Benefits
A Self-Advocate’s Guide to Medicaid
“The Easy Read version is divided into six parts, each containing one subject discussed in the toolkit: Medicaid introduction and background, Who Can Get Medicaid?, What Does Medicaid Pay For?, Medicaid funding, What Could Happen to Medicaid?, and a summary and glossary explaining the terms we use in the toolkit. The Easy Read version uses pictures along with text, and has more white space.”
How to Apply for SSI
The easiest way to begin is to request an appointment to file for benefits. You can request an appointment for yourself or someone you are helping.
Coordination of Benefits in Healthcare for People with Disabilities
Transition to adult healthcare means being aware of the various types of health insurance and how they work together.
Education
Resources from PEATC and Got Transition
Health Care Transition Skill Building in School: Tools for Students, Families, and the IEP Team
Got Transition and PEATC recently held a webinar on Health Care Transition Tools. They discussed the importance of health care transition planning.
Health care transition skills checklist
PEATC’s Health Care Transition Checklist can help youth and young adults (ages 14-25), their families, and IEP Team, build health care transition skills. (attached PDF has RAISE logo-should be same)
Life skills checklist
The Life Skills Checklist from PEATC can help transition age students (14-22), their families, and IEP Team track independent living/life skills.
Health care transition readiness assessment for students with an IEP
This tool form from Got Transition is intended for students and their family/caregivers to compete as part of IEP transition planning meetings.
Sample Goals for the Health Care Transition Readiness Assessment for Students with an IEP
Got Transition created this tool with actual sample pediatric to adult health care transition goals for IEPs.
Healthcare Transition Planning (HTP) and the IEP and IPE A Resource Document (for families)
In this document, we are going to review three important plans: The Individualized Education Program (IEP), the Individualized Plan for Employment (IPE), and the Healthcare Transition Plan (HTP).
Healthcare Transition Planning (HTP) and the IEP and IPE
A Resource Document (for PTIs)
In this document, we are going to review three important plans: The Individualized Education Program (IEP), the Individualized Plan for Employment (IPE), and the Healthcare Transition Plan (HTP).
Planificación de la Transición del Cuidado de la Salud (HTP) y el IEP e IPE
Un Documento de Recursos (para padres)
En este documento, vamos a revisar tres planes importantes: El Programa Educacional Individualizado (IEP), Plan Individual de Empleo (IPE), y el Plan de Transición de Salud (HTP).
Planificación de la Transición del Cuidado de la Salud (HTP) y el IEP e IPE
Un Documento de Recursos (para PTIs)
En este documento, vamos a revisar tres planes importantes: El Programa Educacional Individualizado (IEP), Plan Individual de Empleo (IPE), y el Plan de Transición de Salud (HTP)
Health Care Transition
Transition to adult healthcare is often challenging for autistic children
This article has data on the percentage of adolescents receiving guidance on switching to adult healthcare, by condition.
NCWD/Youth Health Care Transition Brief
RAISE Partner Resource | “The National Collaborative on Workforce and Disability for Youth (NCWD/Youth) has released a new brief on youth transitioning to adult health care, living a healthy lifestyle, and paying for health care. “A Young Person’s Guide to Health Care Transition,” written by youth for youth, provides information and guidance to assist youth in developing a roadmap for transition from pediatric to adult health care.”
Healthcare Transition Tip Sheet for Parent Centers
“Transition from school for students with disabilities is much more than school-to-work. Effective transition for youth with disabilities or complex healthcare needs must consider all aspects of adult life, including health care.”
Medical Supports
Find, Choose, & Keep Great DSPS
“A toolkit for people with disabilities looking for quality, caring and committed direct support professionals.”
Medication Management in College
For kids who are taking medication, part of being independent means being responsible for managing their meds.
Wellness
CDC Disability and Health Promotion Videos, Webinars & Podcasts
CDC Webinars and podcasts on heath and disability
CDC Disability and Health Promotion Website
CDC disability and health promotion.
Mental Health
Anxiety in children 11+
Anxiety disorders affect 25.1% of children between 13 and 18 years old. Download easy to read symptoms, tips, and co-occurring conditions.
Preparing for College Emotionally, Not Just Academically
Tuition isn’t the only thing that’s relentlessly on the rise on American college campuses. Multiple studies show a significant increase in college mental health problems in the last few years, and campus counseling services report being overwhelmed with students seeking help.
Secondary Traumatic Stress
Working with trauma-exposed youth can cause secondary traumatic stress for educators, social workers, and other professionals.
#Trauma-Informed Guiding Principles for Working with #Transition Age Youth
These guiding principles help providers recognize the impact of trauma on transition age youth.
National Children’s Mental Health Family Guide
Here to support you in making the important decisions needed to ensure that your child with mental health challenges receives the services and supports needed for the best life possible.
Disclosing Mental Health Conditions at Work
(Video Spanish) Having a mental illness may not affect your job performance, but others may need job accommodations to perform the essential functions of their job.
Succeeding at Work
At work you have to weigh the advantages against the disadvantages of being open about a mental health condition.
Parent Resources
Transitioning to Adult Care: Supporting Your Youth with Special Health Care Needs
This brief from Children’s Hospital of Philadelphia (CHOP) provides recommendations for pediatric and adult providers, health care systems, and policymakers to ease the transition process from pediatric to adult care for youth with special health care needs.
Your Family #Communication Plan
Read all of FEMA’s guide on how to Create Your #Emergency Family Communication Plan.
Rights
Turning 18: What it Means for Your Health
Quick tip sheet from Got Transition talks to youth/young adult who are turning 18 and need to realize that though it may not make them feel any different, legally, it means they are adults.
New Report on Impact of the COVID-19 Pandemic on People with Disabilities: Research Findings
The report highlights examples of key research findings on the impact of the pandemic on people with disabilities as well as available resources.
Self-Advocacy
Youth-Led Health Center Assessment Tool Facilitator Guide
Accompanies the Youth-Led Health Center Assessment Tool to engage young people in evaluating the youth-friendliness of health centers.
Self-Advocacy for People with Disabilities during Hospitalization
Although hospital stays are difficult for everyone, individuals with disabilities may have unique challenges. Here we provide information on knowing your rights, tips for a hospital stay, and resources.
Resilience: Build skills to endure hardship
Test your resilience level and get tips to build your own resilience.
Dr. Right: the right way to discuss transition
Listen in as Theresa talks to her pediatrician AND her mom about what she wants when she leaves for college.
How To: Talk To Your Doctor
In this video you will learn the important aspects of how to create a positive doctor’s visit.
Tip Sheet: People with Disabilities Can Have a Support Person during Medical Care
Description How self-advocates and families/caregivers can enforce rights for individuals with disabilities to have a support person during healthcare.
#SupportedDecision Making and Your Health
New resource from our partners at PEATC is part of their transition to adulthood series.
Using Supported Decision Making in Health Care: Frequently Asked Questions for Persons with Disabilities, Family Members, Friends, and Supporters
Check out this family resource on supported decision-making from the National Disability Rights Network.
Sex Education
What You Should Know About Birth Control When You Have a Disability
Talking about your sexual activity and history—and what that means for you as a person with a disability—can be challenging. But this is your life, health, and body, so it’s worth figuring out how to approach the subject and communicate your birth control needs.
Why Sex Education for Disabled People Is So Important
Article with statistics and resources links addresses the sameness of individuals with disabilities to others when it comes to hormones and sexual desire.
Youth/Young Adult Resources
Center for Transition to Adult Health Care for Youth with Disabilities Launches New Website
Helps young people with intellectual and developmental disabilities (I/DD) direct their own transition to the adult health care system.